First let me explain a little about Facebook Groups. Three types of groups exist: public, closed, and secret.
When you join a public group, the group will be shown in your groups section on the left of your timeline and your activity will be public. Who can see this will depend on your personal privacy settings.
Joining a closed group means your activity will only be shown to you and the other group members that are your friends. The group does not appear in the group block on your timeline. Your Facebook friends that are not in your group cannot see your activity.
Secret groups are just that, secret. You need to be invited. They cannot be found by searching unless you are or were a member. As with closed groups, you and other group members are the only ones who can see your activity.
Benefits of Joining a Facebook Support Group
You have access to a huge number of people in the same situation as you. Members are from all over the world, you can find someone to chat with and relate to anytime of the day or night. This is a huge plus since most of us have our days and nights reversed or just have trouble sleeping for long periods of time.
Other members who have been in your shoes will offer encouragement, motivation, and inspiration. Did you just accomplish something big for you but seems small in the outside world? We understand and love to celebrate your successes with you. Your successes are inspiration.
Shoulder to Cry On
On the other hand, if you’re having a frustrating day and need someone to listen, understand, or cheer you up; you’ll find support, empathy, and compassion.
Helping others helps yourself! Letting someone know you understand, eases their loneliness. Maybe you’ve had success with something someone else never heard of, how great to be able to provide others with another recovery tool.
Make New Friends
Now I have a confession to make, I was a lurker for many months in many groups just absorbing the vast amounts of information. There’s absolutely nothing wrong with that if that’s what helps you. I also have to admit that once I limited my focus to just a couple of groups and started participating, I grew by leaps and bounds. I learned more about myself, actually made new friends, and helped others. I felt 100% better!
As with the blogs, this list can be overwhelming. Each group has their own nuances. The tone is set at the top with the creator and administrators. Each group’s approach is just slightly different, they all have their own set of rules. Groups range in size from under 100 members to over 4000. Large groups do tend to have more posts but the small groups have just as great participation. It’s just a matter of where you feel comfortable contributing.
Join a Group
I wouldn’t recommend joining them all. Join some, look around, and start participating at your comfort level. Then pick 1 or 2 and commit to participating regularly. Keep joining groups until you find the ones that work for you.
Deeply committing to more than a few groups is impossible unless you spend ALL your time on Facebook. If you’re interested in the groups I frequent, I’ll be creating a post on them in the near future. I wanted to provide a comprehensive list first since we are all different and what works for me may not work for you.
This list only contains closed groups. There are public groups available if you are interested. Just search Facebook for them (you must be logged into Facebook for this link to take you to the search results page).
There is no value to the order of the groups, they are just listed alphabetically. Membership numbers and Administrators are current as of December 1, 2014.
The group names link right to the groups, just click and then join.
If you know of or have a group that I’ve missed please complete this form and I’ll be more than happy to add and possibly join it if you’ll have me!
Closed Facebook Stroke Support Groups
Alternative Health Stroke Help
Admins: Beani Cecile
Awesome Stroke Survivors and Caregivers
Admins: Lynne M Anderson-Campbell,Connie Phipps, Angie Rice-Gaerttner, Graceful Lilly Barreca
Brain Aneurysm Survivors
Admins: Rico Principe, Lisa Robin Jones Belben
Defeating Stroke-A Support Group for Those That Had a Stroke at 55 or Less
Admins: Terri Lee Miller
Kicking Strokes Ass In Words
Admins: Lorraine Gellard, Alf Garnet
Life Changes after a Stroke
800 + Members
Admins: Alicia Jenkins
Admins: Jodi Keen
Positive Thoughts after Stroke, TBI, ABI, Aneurysm and Other Brain Injuries
900 + Members
Admins: Sherrie Stockton Smithers, Cathlyn Mcpherson-taylor
Admins: Sherrie Stockton Smithers, Cindy Starner, Millicent Hunter
Admins: Heather Heddinger-Dix, Jeffrey Brottman, Sherrie Stockton Smithers
Admins: Karen Bayly
Admins: Beani Cecile, Patrick Wolfe, Leesa Paul
Admins: Lee Cartwright
Admins: Paul Hoffman
Admins: Rick Grossman
Admins: Rachel Andrews
Admins: Ron Reis, Richard Bilyk
Admins: Kolleen Arnold
Admins: Jennifer Ribbentrop, Ashley Elizabeth, Brandy Gonzalez
Admins: Lindsay Gill
Admins: Kelly Burke Choquette, Ray Haug
Admins: Amanda Breckenridge, Kimberly Draucker Aikens, Laurie Malloy
Admins: Stacey Klein, Gayle Vidales, Laura Pollard, Sandy Page
Admins: Elizabeth Apple, William Guy, Wren Fournier,
James Cooper, Greg Baynham